Sunday 27 April 2008

RSD self help tips...

A) Be an active partner of the Dr.(s) in charge of your health-care. Write down any questions you have ahead of time, since short-term memory problems are common with RSDS. Always be willing to learn from your Dr. and share with them new information on RSDS as you receive it. Try to take someone into the office with you to help you remember what went on there.
B) Follow your Drs. advice on medications, exercise, rest, etc.
C) Know the medications you are taking and their side effects (if you are not sure then review them with your Pharmacist).Protect yourself, and your stomach, by eating properly.
D) Exercise regularly to keep joints flexible, muscles strong, and to maintain a range of motion in all of your limbs, RSDS affected or not.
E) Use good posture when you are sitting, get up and stretch when you need to. Don‘t over-do. Balance your workload.
F) Be kind to yourself.
G) Keep a journal. This becomes especially helpful for your Dr. and/or SSD/WC and other Drs. and other officials to show what you can and can‘t do on a regular/daily basis. It is also a good source of information to others whom you wish to share your story with.
H) Understand that some of your friends may drop off along the way or have a difficult time understanding and coping with your disease. This is not because you suddenly have become a bad person. Try sharing some basic information with them about RSDS and let them know it is ok to talk about it or not talk about it; that you are still the same person underneath.
I) Involve yourself in a support system such as an RSD Discussion Group, or local RSD/Pain Support Group. Take advantage of it as well as becoming a vital part of it. Help yourself by helping others and getting the word out.
J) Get a Medic Alert tag (1-800-432-5378) to alert Drs. and others to the fact that you have RSD and are on medications !!!
K) Become involved with the Internet Programs available such as Listservs and ChatRooms. These will help you learn about your disease as well as help others by sharing your story. If you don‘t have your own computer, try your local library.

1 comment:

Anonymous said...

Worldwide Awareness Campaign Please Help

People and sites from around the world are coming together to turn November 2013 into International RSD Awareness Month, currently only America has a National Awareness Month.
Please spare 5 1/2 mins to watch this video but be aware you may find some of the images disturbing.
http://www.youtube.com/watch?v=MviVcjWZDts
it is vital that you watch it to the end
If you are newly diagnosed I strongly suggest you do not watch it.
If you live in the UK please sign http://epetitions.direct.gov.uk/petitions/31344
E-mail the link to your MP asking why since being informed on 30/10/2010 David Cameron, Nick Clegg and The DOH have refused to do anything about the situation.
You can also send it to some members of the House of Lords.
http://www.parliament.uk/mps-lords-and-offices/lords/
No matter where you live in the world can you please sign here http://www.pledgebank.com/RSDCRPS
http://you.38degrees.org.uk/petitions/worldwide-rsd-crps-awareness-campaign
http://www.thepetitionsite.com/460/118/995/worldwide-rsdcrps-awareness-campaign/
http://www.change.org/en-GB/petitions/goverments-worldwide-un-world-health-organisiation-find-the-millions-of-un-misdaignosed-rsd-crps-sufferers-across-the-world
http://www.ipetitions.com/petition/worldwide-rsdcrps-awareness-campaign/
http://www.gopetition.com/petitions/worldwide-rsd-crps-awareness-campaign.html
http://www.activism.com/en_GB/petition/worldwide-rsd-crps-awareness-campaign/40439
http://www.causes.com/causes/800617-worldwide-rsd-awareness-campaign/actions/1700679
http://www.petitionbuzz.com/petitions/worldwidersdcrps
http://www.petitiononline.com/RSDCRPS1/petition.html
http://www.communityrun.org/petitions/worldwide-rsd-crps-awareness-campaign-1
https://petitions.whitehouse.gov/petition/take-immediate-action-inform-medical-professionals-existence-rsdcrps-most-painful-incurable/SFkd2cS6

If you live in another Country can you start your own petition and send the link to your own Politicians
If you are willing to commit to spending 15mins a day for 4 weeks then 15mins a week to help spread this then please e-mail me on.
RSDFighter@hotmail.co.uk or join me on facebook
Kevin